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Cure LBSL

Cure LBSL

@UC6YDBVxugH2fJAbRai5hSGA - 538 subscribers

About LBSL LBSL stands for Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation. LBSL is a rare genetic condition that slows robs people of their ability to walk, stand and coordinate all movements. Cure LBSL is a US-based non-profit patient advocacy organization that raises awareness and funds for research and supports affected families.