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Global Foundation for Peroxisomal Disorders

Global Foundation for Peroxisomal Disorders

@UCPEMpj3DwGd10TEZUW_drFg - 715 subscribers

• The GFPD's Mission: To improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services. • Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum, (including those formally known as Neonatal Adrenoleukodystrophy (NALD) and Infantile Refsum Disease (IRD), as well as single enzyme disorders D-Bifunctional Protein Deficiency (DBPD) and Acyl-CoA Oxidase Deficiency (ACOX deficiency). • A peroxisomal disorder on the Zellweger spectrum means that the peroxisomes in your cells aren’t working properly, are absent, or are severely decreased. • Peroxisomes are necessary for cell function, normal brain development, and the formation of myelin.

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