The International Alliance of ALS/MND Associations

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The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. OUR VISION: A World Free of ALS/MND On this channel you will find recordings recordings from our annual conferences and webinars!

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Tribute to Dee Norris | International Alliance

Tribute to Dee Norris | International Alliance The International Alliance of ALS/MND Associations

5 views - 3 days ago

Approved Treatments in ALS/MND

Approved Treatments in ALS/MND The International Alliance of ALS/MND Associations

138 views - 4 days ago

Nothing About Us, Without Us: Highlights from the 2025 Patient Fellows

Nothing About Us, Without Us: Highlights from the 2025 Patient Fellows The International Alliance of ALS/MND Associations

130 views - 4 weeks ago

ALS/MND Connect 2025

ALS/MND Connect 2025 The International Alliance of ALS/MND Associations

76 views - 4 weeks ago

2025 "Day in the Life Of" Experience - Virtual Walk-Through

2025 "Day in the Life Of" Experience - Virtual Walk-Through The International Alliance of ALS/MND Associations

114 views - 3 months ago

2025 March of Faces

2025 March of Faces The International Alliance of ALS/MND Associations

166 views - 3 months ago

Annual Clinical Trials Update

Annual Clinical Trials Update The International Alliance of ALS/MND Associations

181 views - 3 months ago

Bringing Voices to Life Across Borders

Bringing Voices to Life Across Borders The International Alliance of ALS/MND Associations

210 views - 4 months ago

2025 Allied Professionals Forum - Toronto, Canada + Virtual

2025 Allied Professionals Forum - Toronto, Canada + Virtual The International Alliance of ALS/MND Associations

114 views - 5 months ago

International Alliance of ALS MND Associations PALS & CALS Advisory Council Introduction

International Alliance of ALS MND Associations PALS & CALS Advisory Council Introduction The International Alliance of ALS/MND Associations

74 views - 6 months ago

2025 Global Day Message from CEO Cathy Cummings

2025 Global Day Message from CEO Cathy Cummings The International Alliance of ALS/MND Associations

83 views - 8 months ago

Scientific Advisory Council mid-year update and Q&A

Scientific Advisory Council mid-year update and Q&A The International Alliance of ALS/MND Associations

153 views - 8 months ago

Welcome - Cathy Cummings

Welcome - Cathy Cummings The International Alliance of ALS/MND Associations

11 views - 8 months ago

Global South perspectives complete video - Increasing clinical trials capacity in the global south

Global South perspectives complete video - Increasing clinical trials capacity in the global south The International Alliance of ALS/MND Associations

134 views - 8 months ago

Welcome - Program Chairs

Welcome - Program Chairs The International Alliance of ALS/MND Associations

8 months ago

Embracing risk: Enabling doing for people living with MND

Embracing risk: Enabling doing for people living with MND The International Alliance of ALS/MND Associations

13 views - 8 months ago

Experiences for the Soul: Transforming Lives through Creatively Inspired AI & Game Technologies

Experiences for the Soul: Transforming Lives through Creatively Inspired AI & Game Technologies The International Alliance of ALS/MND Associations

5 views - 8 months ago

Eating with Dignity

Eating with Dignity The International Alliance of ALS/MND Associations

11 views - 8 months ago

Message Banking Process: Updated Process and Considerations

Message Banking Process: Updated Process and Considerations The International Alliance of ALS/MND Associations

30 views - 8 months ago

Evaluations on the use of eye gaze driving in powered mobility for clients living with MND

Evaluations on the use of eye gaze driving in powered mobility for clients living with MND The International Alliance of ALS/MND Associations

12 views - 8 months ago

'Invest' in your voice: How a novel co-designed voice banking service supports people with MND

'Invest' in your voice: How a novel co-designed voice banking service supports people with MND The International Alliance of ALS/MND Associations

7 views - 8 months ago

'Why palliative care in ALS? The appropriateness of a care model for managing complexity.

'Why palliative care in ALS? The appropriateness of a care model for managing complexity. The International Alliance of ALS/MND Associations

7 views - 8 months ago

There is more to a person than motor neurone disease

There is more to a person than motor neurone disease The International Alliance of ALS/MND Associations

9 views - 8 months ago

International survey of patients treated by Home Mechanical Ventilation to enable personalised care

International survey of patients treated by Home Mechanical Ventilation to enable personalised care The International Alliance of ALS/MND Associations

1 views - 8 months ago

The Deceptive Comfort of BiPAP in MND, from Fatigue Relief to choosing the Final Farewell

The Deceptive Comfort of BiPAP in MND, from Fatigue Relief to choosing the Final Farewell The International Alliance of ALS/MND Associations

24 views - 8 months ago

Experiential Apps

Experiential Apps The International Alliance of ALS/MND Associations

2 views - 8 months ago

Impact of dysarthria on participation in daily activities + psychosocial wellbeing in people w/ MND

Impact of dysarthria on participation in daily activities + psychosocial wellbeing in people w/ MND The International Alliance of ALS/MND Associations

18 views - 8 months ago

Evidence based care – a review of the NICE guideline for MND

Evidence based care – a review of the NICE guideline for MND The International Alliance of ALS/MND Associations

6 views - 8 months ago

Lived experiences - people with (pALS) with percutaneous endoscopic gastrostomy (PEG) feeding tube

Lived experiences - people with (pALS) with percutaneous endoscopic gastrostomy (PEG) feeding tube The International Alliance of ALS/MND Associations

30 views - 8 months ago

Exercise Interventions for People with ALS/MND: A Systematic Review

Exercise Interventions for People with ALS/MND: A Systematic Review The International Alliance of ALS/MND Associations

11 views - 8 months ago

Showcase of Art

Showcase of Art The International Alliance of ALS/MND Associations

8 views - 8 months ago

Embedding Spiritual Care: Improving support for people with MND and their families

Embedding Spiritual Care: Improving support for people with MND and their families The International Alliance of ALS/MND Associations

8 months ago

Innovative Footwear solution for ALS/MND

Innovative Footwear solution for ALS/MND The International Alliance of ALS/MND Associations

4 views - 8 months ago

2023 Allied Professionals Forum Session 4 Part 4 PTSD

2023 Allied Professionals Forum Session 4 Part 4 PTSD The International Alliance of ALS/MND Associations

3 views - 8 months ago

Emergency Preparedness

Emergency Preparedness The International Alliance of ALS/MND Associations

8 months ago

2023 Allied Health Professional Award

2023 Allied Health Professional Award The International Alliance of ALS/MND Associations

8 months ago

What does sleep have to do with it? Experiences of Young Carers in ALS/MND

What does sleep have to do with it? Experiences of Young Carers in ALS/MND The International Alliance of ALS/MND Associations

3 views - 8 months ago

After the Loss of a Loved One with ALS: “What next?”

After the Loss of a Loved One with ALS: “What next?” The International Alliance of ALS/MND Associations

24 views - 8 months ago

ALS: A Unique Assessment Process for Patients, Families and Providers

ALS: A Unique Assessment Process for Patients, Families and Providers The International Alliance of ALS/MND Associations

6 views - 8 months ago

Facilitated Discussion: What´s keeping you up at night?

Facilitated Discussion: What´s keeping you up at night? The International Alliance of ALS/MND Associations

8 months ago

INARC: Patient retention in ALS clinical trials, a closer look at dysarthria and FTD

INARC: Patient retention in ALS clinical trials, a closer look at dysarthria and FTD The International Alliance of ALS/MND Associations

12 views - 8 months ago

Expanding Access to Genetics Education, Counseling, and Testing: Innovations in ALS Genetics Care

Expanding Access to Genetics Education, Counseling, and Testing: Innovations in ALS Genetics Care The International Alliance of ALS/MND Associations

19 views - 8 months ago

INARC - International patient inclusion in ALS trials

INARC - International patient inclusion in ALS trials The International Alliance of ALS/MND Associations

7 views - 8 months ago

Cognition, behaviour and decision-making in MND/ALS

Cognition, behaviour and decision-making in MND/ALS The International Alliance of ALS/MND Associations

3 views - 8 months ago

INARC: Intersection between ALS care and research

INARC: Intersection between ALS care and research The International Alliance of ALS/MND Associations

23 views - 8 months ago

ALSFRS-R Harmonisation

ALSFRS-R Harmonisation The International Alliance of ALS/MND Associations

57 views - 8 months ago

Closing the Gap: Quality of Life Through Assistive Technology

Closing the Gap: Quality of Life Through Assistive Technology The International Alliance of ALS/MND Associations

8 views - 8 months ago

Healthy teeth and proper oral health

Healthy teeth and proper oral health The International Alliance of ALS/MND Associations

2 views - 8 months ago

Exploring the Uncertainty Principle - Measuring Quality of Life with ALS

Exploring the Uncertainty Principle - Measuring Quality of Life with ALS The International Alliance of ALS/MND Associations

2 views - 8 months ago

Cost effectiveness and sustainability of an Equipment Loan Pool for people living with MND

Cost effectiveness and sustainability of an Equipment Loan Pool for people living with MND The International Alliance of ALS/MND Associations

10 views - 8 months ago

Nurse´s experience of caring for people with ALS at end of life: a Canadian qualitative study

Nurse´s experience of caring for people with ALS at end of life: a Canadian qualitative study The International Alliance of ALS/MND Associations

10 views - 8 months ago

Supplemental Instructions for End of Life Care with ALS

Supplemental Instructions for End of Life Care with ALS The International Alliance of ALS/MND Associations

6 views - 8 months ago

Improving Quality of Life through Education

Improving Quality of Life through Education The International Alliance of ALS/MND Associations

14 views - 8 months ago

Mind's Eye - world's first accessible way for people with MND/ALS to express through digital Art

Mind's Eye - world's first accessible way for people with MND/ALS to express through digital Art The International Alliance of ALS/MND Associations

16 views - 8 months ago

ALS/MND Platform Trials Update webinar

ALS/MND Platform Trials Update webinar The International Alliance of ALS/MND Associations

330 views - 11 months ago

Looking Forward to 2025

Looking Forward to 2025 The International Alliance of ALS/MND Associations

16 views - 11 months ago

Allied Health Professional Award Presentation

Allied Health Professional Award Presentation The International Alliance of ALS/MND Associations

11 views - 11 months ago

The "Pass It On Project" - An Innovative Approach to Collaboration

The "Pass It On Project" - An Innovative Approach to Collaboration The International Alliance of ALS/MND Associations

12 views - 11 months ago

Spasticity Management in ALS/MND and PLS, including the Role of Botulinum Toxin

Spasticity Management in ALS/MND and PLS, including the Role of Botulinum Toxin The International Alliance of ALS/MND Associations

204 views - 11 months ago

ALS/MND "Chopped": Helping Find Creative Ways to Modify Food

ALS/MND "Chopped": Helping Find Creative Ways to Modify Food The International Alliance of ALS/MND Associations

47 views - 11 months ago